University can be daunting experience for anyone, but being a student with a chronic illness can bring its own unique challenges. Pippa Stacey was diagnosed with ME in her first year as a student at York University which forced her to adapt her way of living to help manage her condition. Since graduating in 2016, … Continue reading University and Chronic Illness: A Survival Guide – Interview with Pippa Stacey
RAiISE Your Voice is a series of blog posts in which we provide a platform for young people to share their stories and speak up about issues they face whilst living with invisible illnesses and conditions. In this post we hear from Amber, 18, who responds to the phrase 'you don't look disabled.' “You don't look … Continue reading RAiISE Your Voice – Amber
RAiISE Your Voice is a series of blog posts in which we provide a platform for young people to share their stories and speak up about issues they face whilst living with invisible illnesses and conditions. In this post we hear from Sophie, an A Level student who tells us what she wishes she could tell … Continue reading RAiISE Your Voice – Sophie
RAiISE Founder and CEO, Sophie Ainsworth, teamed up with Fixers in 2018 to make a film showing how it feels to have an illness that people can’t see or don’t understand. Here's what Sophie said to Fixers: "I want to raise awareness about living with an invisible illness after being diagnosed with lupus when I was … Continue reading See My Invisible Disability
With trips to Parliament and the Department of Education, talks with graphic designers and charity registration, it's safe to say that 2018 has begun well for RAiISE. Amongst the flurry of 'New Year, New Me' posts and already broken resolutions, I've found it difficult to reflect on the past year and plan progress for the … Continue reading New Year, Same RAiISE (But Better!)
Welcome to our brand new official website! I’m so excited that we now have this platform to share our content, resources and updates as production of our information pack for schools continues to be in development. I wanted the first blog I wrote for our site launch to be filled with positivity and excitement regarding … Continue reading Website Launch
Sophie Ainsworth, Founder and CEO of RAiISE, shares her latest update. It’s been a while since my last blog post but that certainly doesn’t mean that we haven’t been busy with all things RAiISE! It has been an incredibly exciting few months as I have been promoting and sharing the project as we become closer to finishing … Continue reading Content Development, Promotion and Awards!
As ever, it’s been a busy few months! Despite being less than a year old, RAiISE has been generating a lot of interest, which has grown even more so since my last blog post, so here’s a quick update on everything that’s been going on for RAiISE in the last couple of months. At the end … Continue reading Summer 2016 Conferences and Meetings
It’s been 7 months since my initial planning meeting with former Chair of Lupus UK, Jane Dunnage, and Dr Eve Smith when I pitched an idea I’d had about raising awareness of invisible illnesses in schools, following my negative experience. Sat in a small meeting room in the old Alder Hey building, I never imagined … Continue reading First Workshop Day and More!
Back in January, I wrote a blog post about my experiences with having an invisible illness and how much it can affect my day-to-day life. I also introduced a project I am working on with the NIHR Alder Hey Clinical Research Facility (CRF) and Alder Hey NHS Children’s Foundation Trust to raise awareness of invisible illnesses within … Continue reading Development of RAiISE