RAiISE Your Voice is a blog series in which we provide a platform for young people to share their stories and speak up about issues they face whilst living with invisible illnesses and conditions. In this post, we hear from Skye, who talks about getting diagnosed with ADHD in adulthood. She discusses difficulties growing up undiagnosed, … Continue reading RAiISE Your Voice – Skye
RAiISE Your Voice is a blog series in which we provide a platform for young people to share their stories and speak up about issues they face whilst living with invisible illnesses and conditions. In this post, we hear from Emma, who shares her experience of gtowing up with type 1 diabetes. People always say … Continue reading RAiISE Your Voice – Emma
In our second blog this Endometriosis Awareness Month, Trustee Robyn Challinor writes a letter to her 14 year old self, giving her some words of advice she has learnt over the last 13 years of living with Polycystic Ovary Syndrome (PCOS) and suspected Endometriosis. This past year has given everyone time at home to reflect. … Continue reading Letter to My Younger Self – Robyn
This Endometriosis Awareness Month, RAiISE Trustee Laura Whitty has shared a letter to her younger self. Like many women, Laura has spent years fighting for a diagnosis and treatment. Here she shares her story and the words of advice she would pass on to herself and other young people experiencing endometriosis. I won’t lie, I … Continue reading Letter to My Younger Self – Laura
We're looking for young people who use Ostomy pouches to get involved in our latest project with Ostique Ltd. This year at RAiISE, we’re keen to get to work on making sure that children and young people’s voices are heard throughout healthcare. That’s why we were so excited when the wonderful team at Ostique got … Continue reading Get Involved: New Ostomy Pouch Design Project with Ostique Ltd.
University can be daunting experience for anyone, but being a student with a chronic illness can bring its own unique challenges. Pippa Stacey was diagnosed with ME in her first year as a student at York University which forced her to adapt her way of living to help manage her condition. Since graduating in 2016, … Continue reading University and Chronic Illness: A Survival Guide – Interview with Pippa Stacey
RAiISE Your Voice is a series of blog posts in which we provide a platform for young people to share their stories and speak up about issues they face whilst living with invisible illnesses and conditions. In this post we hear from Amber, 18, who responds to the phrase 'you don't look disabled.' “You don't look … Continue reading RAiISE Your Voice – Amber
RAiISE Your Voice is a series of blog posts in which we provide a platform for young people to share their stories and speak up about issues they face whilst living with invisible illnesses and conditions. In this post we hear from Sophie, an A Level student who tells us what she wishes she could tell … Continue reading RAiISE Your Voice – Sophie
RAiISE Founder and CEO, Sophie Ainsworth, teamed up with Fixers in 2018 to make a film showing how it feels to have an illness that people can’t see or don’t understand. Here's what Sophie said to Fixers: "I want to raise awareness about living with an invisible illness after being diagnosed with lupus when I was … Continue reading See My Invisible Disability
With trips to Parliament and the Department of Education, talks with graphic designers and charity registration, it's safe to say that 2018 has begun well for RAiISE. Amongst the flurry of 'New Year, New Me' posts and already broken resolutions, I've found it difficult to reflect on the past year and plan progress for the … Continue reading New Year, Same RAiISE (But Better!)
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