First Workshop Day and More!
Since then, the project has grown bigger and bigger and I couldn’t be more excited! At the beginning of the month (9th April) we hosted a workshop day at Alder Hey’s Institute in the Park. We invited a variety of people to the event: young people, parents, and education and health professionals. Approximately 30 people attended to take part in a variety of workshops in which we discussed issues and past experiences young people have had in school because of their invisible illness and we were able to get the views of all the different people involved. The day involved looking at case study examples, discussing ways difficult situations could be resolved; sharing personal past experiences, thinking about what worked well and what extra support was needed; and how we will communicate the information and advice we have (see the full report here). For me though, the most exciting part of the day was spending time with the other young people where we came up with an official name and logo for the project. I am pleased to announce the name of the campaign is RAiISE, meaning Raising Awareness of (Invisible) Illness in Schools and Education. We were all really happy with the name and it’s connotations of empowering young people with invisible illnesses, which was one of our main ideas acquired from the day.
I’m also really excited about the International Children’s Advisory Network (iCAN) Summit in Barcelona in June. It’ll be so interesting to meet children and young people from all over the world, coming together for the common aim of improving research into paediatric conditions.